OUR WORK

ENDING STIGMA

Working together as a city to get London to zero HIV stigma.

Despite all the advances in clinical care, we know that for people living with HIV life can be difficult because of the stigma associated with HIV.

HIV stigma is often based on outdated ideas and made worse by discrimination in other areas like gender, sexuality or race.

We know that in order to get us to zero new cases of HIV, zero preventable deaths and 100 per cent of people living well, we must fight stigma. We have to work together with people living with HIV, the voluntary sector, doctors and nurses, the Mayor of London, London Councils, Public Health England (London) and NHS England (London).

London has identified a budget, as part of the Fast-Track Cities funding from NHS England (London), to help us tackle stigma as a city over the next three years.

In 2019 the Fast-Track Cities London Leadership Group set up a stigma working group to look at the current evidence on stigma, review existing work and draft an action plan. This stigma group has a range of people on it from the voluntary sector, statutory agencies, the NHS, local councils, academics and people living with HIV.

The stigma group described three key areas we need to focus on, addressing internal and external stigma at the same time. A joint focus on these areas will speed up London’s response to ending stigma.

In December 2019 the stigma group shared the draft action plan and asked for feedback. We heard from over 100 people and agencies about what London should do to end the stigma around HIV.

The three key areas we proposed to tackle together as a city are:

Internalised stigma: We will create a course outline. The course will be adaptable for different communities, cultures and contexts. We will develop the course with HIV organisations and people from the community. We will then invite organisations to bid to deliver the course to the people they serve.

Stigma in the NHS and other public services: We will commission an organisation to create an HIV-friendly charter, working with representatives from the HIV community, NHS and London boroughs, Health Education England and the voluntary sector. We will pilot the charter in a few NHS organisations first to test and develop it.

Stigma in society: We will commission a survey to set a baseline on the public’s knowledge and attitudes towards HIV. We will use this data to design work to tackle stigma and discrimination in London. The stigma group will invite organisations that run existing campaigns to get involved.

Read the stigma proposals for London following consultation here:

Updated stigma plans for London March 2020

Work during the COVID pandemic 2020/21

Following a pause during the first five months of the Coronavirus pandemic, we reconvened the stigma group in August 2020. The stigma group reviewed the proposals to make sure they were robust and appropriate for a post-COVID London.

We commissioned the National AIDS Trust and BritainThinks to work with the HIV community to develop a public knowledge and attitudes survey. The survey results were published in July 2021. Read the national public knowledge and attitudes survey results and results for London on our website.

We have brought together a community of practice from the voluntary sector and people living with HIV, this consists of 8 organisations expert in their field. The group has created a framework for an empowerment programme to tackle internalised stigma for people living with HIV. In October 2021 we are launching a fund so that organisations can use the framework to support people living with HIV to have the necessary skills and techniques to develop resilience and confidence to tackle internalised stigma. Read all about the fund here.

We are currently working with two London hospital Trusts on plans to tackle stigma in the NHS. We are supporting them with the testing and roll out of a survey of staff on knowledge and attitudes towards HIV. Following the results, we’ll look to develop training and development messages about HIV, stigma and discrimination and Undetectable = Untransmittable #UequalsU.

 

This feedback shaped the stigma proposals for London, which are published here:

Stigma plans for London March 2020

You can read more about the feedback process here:

Appendix A: How did we get feedback

Appendix B: Summary of what people told us

Appendix C: Results of fact finding survey on what work already exists in London

We want to keep everyone up to date with this work and need people to get involved, so please email us at hlp.londonftci@nhs.net.