OUR WORK

ENDING STIGMA

Working together as a city to get London to zero HIV stigma.

Despite all the advances in clinical care, we know that for people living with HIV life can be difficult because of the stigma associated with HIV.

HIV stigma is often based on outdated ideas and made worse by discrimination in other areas like gender, sexuality or race.

We know that in order to get us to zero new cases of HIV, zero preventable deaths and 100 per cent of people living well, we must fight stigma. We have to work together with people living with HIV, the voluntary sector, doctors and nurses, the Mayor of London, London Councils, Public Health England (London) and NHS England (London).

London has identified a budget, as part of the Fast-Track City funding from NHS England (London), to help us tackle stigma as a city over the next three years.

In 2019 the Fast-Track Cities London Leadership Group set up a stigma working group to look at the current evidence on stigma, review existing work and draft an action plan. This stigma group has a range of people on it from the voluntary sector, statutory agencies, the NHS, local councils, academics and people living with HIV.

The stigma group described three key areas we need to focus on, addressing internal and external stigma at the same time. A joint focus on these areas will speed up London’s response to ending stigma.

In December 2019 the stigma group shared the draft action plan and asked for feedback. We heard from over 100 people and agencies about what London should do to end the stigma around HIV.

The three key areas we are proposing to tackle together as a city are:

Internal stigma: We will create a course outline. The course will be adaptable for different communities, cultures and contexts. We will develop the course with HIV organisations and people from the community. We will then invite organisations to bid to deliver the course to the people they serve.

Stigma in the NHS and other public services: We will commission an organisation to create an HIV-friendly charter, working with representatives from the HIV community, NHS and London boroughs, Health Education England and the voluntary sector. We will pilot the charter in a few NHS organisations first to test and develop it.

Stigma in society: We will commission a survey to set a baseline on the public’s knowledge and attitudes towards HIV. We will use this data to design work to tackle stigma and discrimination in London. The stigma group will invite organisations that run existing campaigns to get involved.

Read the stigma proposals for London following consultation here:

Updated stigma plans for London March 2020

Plans for 2020/21

Following a pause during the first five months of the Coronavirus pandemic, we reconvened the stigma group in August 2020. The stigma group is currently reviewing the proposals and making sure they are robust and appropriate for a post-COVID London.

We want to continue with the plans to tackle stigma in society. Therefore, we have commissioned the National AIDS Trust and BritainThinks to work with the HIV community to develop a public attitudes survey. This work will start in December 2020.

We are also planning to bring a group together from the voluntary sector and people living with HIV to tackle self-stigma. The group will create a framework for empowerment training for people living with, affected by or at risk of HIV. This training will support people to develop resilience, confidence and other skills to tackle self-stigma.

The plans to tackle stigma in the NHS are currently on hold until 2021, to allow the NHS to recover from the pandemic. However, we are working on messages about HIV, stigma and discrimination and Undetectable = Untransmittable #UequalsU.

 

This feedback shaped the stigma proposals for London, which are published here:

Stigma plans for London March 2020

You can read more about the feedback process here:

Appendix A: How did we get feedback

Appendix B: Summary of what people told us

Appendix C: Results of fact finding survey on what work already exists in London

Following a pause during the first five months of the Coronavirus pandemic, we reconvened the stigma group in August 2020. The stigma group is currently reviewing the proposals and making sure they are robust and appropriate for a post-COVID London.

We want to keep everyone up to date with this work and need people to get involved, so please email us at hlp.londonftci@nhs.net.